I have had some great feedback about my last post. I would like to clarify a few things. I understand that our local healthcare professionals are doing the best that they can. I have generally been so happy with the care my son, W, has received everytime we have to make an appearance at the local ER because his asthma decides to act up. I just feel that I fell through the cracks and it frustrates me to no end.
I am still a little angry because from the first CT scan where the doctor’s in the ER noticed my enlarged ventricles and said to me “looks like you have had them from birth. It is your sinuses causing you issues”. I went into the ER three times because during physical activity I had massive headaches then a trickle of fluid from my nose. Once again the Doctors said “It was your sinuses”. I questioned if it could be CSF. The response was “No. Without a head injury CSF will not drain outside your body”. No one once looked to see if it was intercranial hypertension where CSF can drain from your nose.
I waited politely for four months to see a local neurologist whos says that “most likely the issues are sinuses but you do have enlarged venticles so I will refer you to the Hydrocephalus clinic, but I really think it is your sinuses”. Then I saw the ENT and he saw me and his diagnosis was “there is nothing wrong with your sinuses. The symptoms you are experiencing are neurological”. Dilema – am I going crazing of having some sort of crisis. I am turning 40 this year.
Since everyone, my GP, Neurologist, and ENT say everything is fine I decide to do the MHC Rattler Run. I know I can easily do the 3km so I sign up. On the day of the race there is snow on the ground. I decide to wear more than what I normally would because it is only 3km that I will be running. So I am running and almost done when I can’t feel below my right knee. My right side of my face goes further number rather than just a small patch, it is almost the entire right side. I come in third and have to wait for medals. I am kinda in a daze. I am scared to go to the ER because of my previous encounters so I go to walk-in. The doctor does an assessment – I have my eyes closed & and I fall to the right. WTF what alien took my body. He tells me if symptoms get worse go to the ER.
I book an appt. with my GP. I tell him “I do not want another CT as I have over 800 days of extra radiation in the last six months. The same scans are not telling you anything”. He says “I will be waiting for months for an MRI”. I end up saying “that I will go to Calgary and pay for one”. So I went to Calgary two days later and had a head & neck MRI. Yay no stroke or cartoid separation and yes enlarge ventricles. I send the images to the Hydrocephalus clinic and we get a call in June booking us an appt for when I am on vacation. With a little re-scheduling I get in July 25.
So the running caused a lot of pressure that created my gait to get worse quicker. My right sided weakness and tingling can also be symptoms as well made worse because of the run. So for the moment I am not allowed to run. I can do some activities as long as the pressure doesn’t get too great on the head. It is up to my discretion to set my own limits. I find this hard to do as I am a person who always pushed herself.
So I may sound like a cranky bear, but really I am just letting it go by venting. So breath, move forward and all is good!