Howdy Hydrocephalus

Understanding my unique gyroscope


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3-2-1 Blast Off

IMG_0928-0.JPGOn my quest to find more energy and to nip my fatigue into a more manageable piece of my life. I read numerous articles such as Feed Your Body, Feed Your Brain – Nutrition to speed brain recovery. Then I began to read a book about an elimination diet to help your body heal and reduce internal inflammation. This spurred my brain and I remembered about my allergy testing I had done a long long long time ago.

I was having IBS and allergy issues when I lived in Fort Nelson, BC. The doctor there put in a referral to see an allergist. Chris and I drove the six hours to Grand Prairie, Alberta to have allergy tests done. I really wish I kept the list. I had reacted to a whole bunch of things. I was to avoid, eggs, wheat, potatoes, tomatoes and a bunch of other food I can no longer remember. I had also reacted to dust/dust mites and snow mold. I really wish I could remember more. However, I do remember looking at the list and wondering what the heck I could eat there was so many food items on it. The Doctor didn’t have any help for me on that. So I basically said thanks for the info and continued on eating as I normally had always done.

Skip forward 14 years and the options for food choices for people on an elimination diet are amazing. There are meal ideas, recipies, hints, tips and all sort of wonderful stories on the web.
He won’t Know it is paleo blog
The Urban Poser Blog
Gluten Free Goddess Blog
Purusing these blogs and other websites gave me inspiration and the knowledge to be able to test run a 21-day elimination diet. I put word out to friends and found out that Costco carried a gluten-free pancake & waffle mix, cup for cup gluten-free flour mix, organic palm sugar and gluten-free pasta. I went there and stocked up. I already had coconut oil and olive oil and flax seeds.

I began my peanut-free, dairy-free, soy-free, corn-free, egg-free, gluten-free, refined sugar-free and nightshade veggie-free diet. It really does sound very overwhelming but so far it has been pretty good. I fell for one-day and ate refined sugar so I had to set the clock back and start again for that one food category the next day.

I have successfully made home-made blueberry/raspberry gluten-free muffins sweetened with palm sugar. Palm sugar is a low glycemic sugar.
I then made tortillas. They were not round but free-form. I had a turkey wrap with spinach and strawberries and it was divine! Bread for me – Yay!
I have been drinking smoothies with Greens and hemp fibre, coconut/almond milk and lots of fruit for breakfast, lunch or snacks.
I have been having fun exploring and enjoying making dinners the most. Tonight I made a pesto pasta with sautéed beet greens, beans and a bit of chicken.

I am tasting so many amazing natural flavours. Thank goodness for lots of amazing options that I can experiment with. I hope that I will be able to notice changes by the end of three weeks. Here’s to blasting of with energy and increased attention span.

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Kicked to the Curb

After December’s nasty endless SJS flare, I thought that moving at the of January would create complete havoc with my body. Instead January was a reprieve except for the endless hair loss. Thank god for lots of curly hair. It was becoming normal for me to wake up with pillow full of hair or that where ever I would go there would be kelly hair bunnies everywhere. The hair shedding was worse than all three of my animals combined. It was not like having a stray hair on your shoulder, but I would have enough hair on my shoulders and back to make two chewbacca dolls (one for each shoulder).

In January I did a bit more research and read a couple books on health & wellness. I looked into revamping the wackload of vitamins my neurologist prescribed me for my continuous head pain; head healing and head health. I started looking into optimal daily dose (ODD) rather than recommended daily dose (RDD)

I found out that my neuro had basically had me taking ODD levels for my vitamin E, super B-complex, Calcium, CO-Q10 and Magnesium. I just ramped up my Vitamin C and Vitamin D. I also read that some neuros are recommending between 6-10mg of Omega-3s per day. I am not a big fish eater so pills it is. I gag at these pills and hat the the burpy after taste every night, but I have been taking 6mg a day.

We are almost done February and the time as flown. I have only had one minor flare with skin & scalp sensitivity/burning and raw inside of mouth that lasted for about a week. Chris had to remind me to take benedryll at first sign of flare when my lymph nodes swell up that my throat feels tight. I am glad he did because I think we caught the flare in the bud and because it was short-lived I didn’t have to take a trip to the ER or start prednisone again. Even my hair falling out has started to ease.

I hope that trying to eat a bit better, take my vitamins, using my essential oils, taking my regular medications (down to only two – yay) will continue to aid in my recovery, increased energy and physical well-being.

I have been a part of the SJS community on Facebook and have been getting updates to other peoples’ struggles with this horrible reaction. I have watched videos on how SJS progresses to TENS and I am so grateful that my rash go beyond that what it. I am glad for not having to be treated in a burn unit or my eye sight gone (just minor irritation and overly dryness). I only have a few scars on my feet and ankles from blisters that took months to heal. I may have a couple scars on my back but I am unsure. I really had no energy and was extremely fatigued from September until January.

I am oh so grateful that my bout did not turn into TENS. I am grateful that both myself and my family have been strong through this blip.

However, it is high time that I kick this SJS out of my system. I would like it to leave now, not ever ever ever comeback and not to have anymore flares – please and thank you. And please educate before you medicate! When there is a side effect of a rash it means that it can potentially be SJS!

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