Howdy Hydrocephalus

Understanding my unique gyroscope

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Speedy summer

july2015kelly 115I have been having a really busy summer. My house has been a whirlwind of boys running inside, outside and upside down! There have been video games, television on constantly, talking, tablet playing, hockey, trampolining, swimming and that all going on in my visual/hearing area. It has been a very sense stimulating/over stimulating summer. However, so far I have not only survived, but thrived. Meaning, I haven’t completely melted down yet…okay was a little edgy at times when I was getting over tired. Now I am trying to figure out a new nap time.  It has not been structured, but more of a free for all, as I can’t seem to find an early morning rising time. Lately, it had been 9:30 am and that throws everything off.

I have been feeling progressively fatigued including more breakthrough pain for the last couple of weeks. I am wondering if my Botox has begun to wear off and the Nabilone can’t handle that all by itself. I really hope that it is just that simple. We find out on July 27 when I go to Calgary to get another set of shots. I am definately not getting anything done that I wanted to. I keep trying to do a to do list, but keep forgetting and then spend my morning functioning time trying to remember what I needed to do. It isn’t bad going with the flow. Just the boys and I will have one heck of a time at the end of August trying to get a schedule going again. Showers..dinner…studying…bed..whaaaaaat! I can hear it now. Maybe they will be so tired, they will like having a routine.

july2015kelly 094We have had some summer weather that has made me feel a little yucky still but overall a million times better than before. Because my visual, and hearing stimulation is continually being challenged this summer, It has affected my thinking and processing. I have no idea what happens to my day, but it does slip by quite quickly. I am beginning to feel like a walking zombie again but that could be because I have been getting the RV ready to go again. It is so hard to try and do. It takes me about ten days and then I still forget stuff. I have a list and everything but that doesn’t help if I forget to use it. Here’s to a wonderful summer free from pain and crazy brain quirks to you!


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“I’ll Do It My Way”: How I try to simplify and manage my life!

Creating a routine, reducing energy and stress energy sound like a good thing to me.

Sharing some Information and Thoughts on Head and Brain Injury

How I try to simplify and manage my life

After holidaying with me in South Africa for a month, my son made some notes and suggested it would be of great interest to  neurologists …and no-one would ever believe a day in my life. So here are some of his (and my) brief notes (points) on change in basic living habits.

“He needs a daily routine. What he does to complete each set task/activity and the reason he does it this way.


* Have no distractions

* Give me no choices (the KISS principle = “keep it simple, s”)

* be single-minded and totally focussed on the immediate task at hand (with no distractions/and/or interruptions)

* no multi-tasking for me, like walking and talking!

* am not at all observant, so absorbed on a task I take very little notice of my surroundings  (not walking too straight)#


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Lumosity: Bootcamp For Your Brain

I am also a luminosity person. When I first started in Rehab at hospital, I was in the 6th percentile and when I ended my subscription, a year later I was in the 54 percentile. I wish I had continued with using luminosity rather going to the Brain Injury Re-learning clinic. I restarted about a month or so ago and I am now in the 33 percentile. I went down. I hope that I can continue to improve! I know that these sites get a bad rap for being more game like, However, these type of game do help with helping you recover from a brain injury. When I was in hospital, is where I found out how much Ipad and their apps are used to help make recovery fun. Wii games were also used a lot too. It is bad enough that you are going through a recovery process, why do people question if a recovery technique is fun. There is no rule that recovery has to be all serious and boring. Fun games like “Where’s my Water” help you visually solve problems and are fun at same time.



For those of your who have never heard of Lumosity, Lumosity is essentially a brain training program to help keep your brain challenged. It focuses on 5 brain areas including: speed, memory, attention, flexibility, and problem solving. I had seen commercials for Lumosity for several months (before my injury) and finally decided to try it in March 2013.

At the time (and sometimes to this day) I have extreme short-term memory loss. As said before, I had also worked with my speech therapist at Northeast Rehab (January to March 2013) on how to do simple math problems, memory games, sequencing problems, etc. So I figured why not give it a try?

training history

As you can see I wasn’t very good at Lumosity when I first started. But clearly something happened between March and May 2013.

Many people think Lumosity won’t make any difference but I can assure you it does

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