Howdy Hydrocephalus

Understanding my unique gyroscope


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LA Kings support Hydrocephalus Awareness

download (4)I remember seeing an article about how the LA Kings support Hydrocephalus Awareness and Research. Finally I remembered about the article and looked it up.

LA Kings Support Hydrocephalus

It is great to see that some high profile teams are actually supporting this cause. To date three NHL teams have supported the Hydrocephalus Awareness; LA Kings, Anheim Ducks and Washington Capitals. It would be great to see more professional sporting teams support Brain Injury Awareness and Hydrocephalus Awareness. This would be great because any sport head injury can cause a brain injury and if it was severe enough hydrocephalus can also be added to the mix.

To say that Hydrocephalus and Severe Acquired Brain Injury has changed my life dramatically is an understatement. I am fortunate, I do not have a shunt, but I do have an ETV Free Flowing CSF hole that could close and malfunction sending me for another brain surgery. Also my vision has been affected from the Interncranial pressure. I still have issues with my one eye and if there is an increase intercrananial pressure, it can negatively impact my vision considerably.

I am not angry or upset with this new life time journey, but continue to fight daily for small improvements in my life. I always hope that there will be a new medical soloution or strategy that can help make my time here a little better. Whether that be reducing pain, increasing executive functions, visual improvements, increasing energy and controlling my wacky right side which has been getting weird again. For example, I was painting on a picnic table this weekend and my family was sitting around the campsite when all of a sudden my paintbrush flew out of my right hand…and the weird thing is that I am left handed but thought I should try to do some broad painting strokes with my right hand. Then this morning I go to sit down on couch to write this post with open laptop in left hand and contigo coffee mug in right hand. As I sit down, my right hand squeezes the drink button and hot hot coffee continually flies in air as I do not realize my hand is hitting the button all over couch, laptop and my burning my leg.

images (9)All I can say is that Brain Injury and Hydrocephalus is quite the adventure and that more education, awareness and support are needed!

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A Mother’s Plea

This is a story I found on the Forbes site and I thought I would re-post. In the United States they have Hydro walks for fundraising and education. I am not too sure what happens here in Canada. Most people look at me with a quizzical look when I say that I have hydrocephalus.

A Mother’s Plea

Heres to hoping to spread the word and find better ways to deal with this condition.

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